000			02728nam a22002417a 4500
999			_c2737 _d2737
003			OSt
005			20220906184708.0
008			190616b ||||| |||| 00| 0 eng d
060			_aRES-00914
100			_aKhandaker,Gulam. _92280
245			_aNepal cerebral palsy register (NCPR): towards developing a platform for national cerebral palsy (CP) register and population - based surveillance of children with CP in Gorkha, Nepal.
260			_cc2019.
300			_aii,11p.
500			_aResearch Report.
520			_aSUMMARY: Cerebral palsy (CP) is a group of non-progressive disorder that affects the immature brain of children leading to impaired motor function and childhood disability. CP is the leading cause of childhood disability worldwide and the burden is comparatively higher in low and middle income countries than the high income countries. In this study we aimed to conduct a population based surveillance of children with CP aged below 18 years in selected six municipalities of Gorkha district, Nepal. We adopted the key informant method (KIM) to identify children with suspected CP from the community by trained local volunteers known as Key Informants (KIs). A total of 174 KIs were trained to identify children with CP from their community as part of this study. Each of the children with suspected CP then underwent detailed neurodevelopmental assessment by a multidisciplinary medical assessment team including paediatricians and physiotherapist. The medical assessment team confirmed the diagnosis of CP and collected detailed information using a standard data collection form. In this study, a total of 213 children with suspected CP listed by the KIs attended the medical assessment camps and of them 181 children had confirmed CP. All of them underwent detailed neuro developmental assessment where their socio-demographic characteristics, pre & perinatal history, motor function, associated impairments, feeding difficulties, nutritional status, educational and rehabilitation status were documented. The children who could be benefitted from physiotherapy received an on spot session by a trained physiotherapist and their primary caregivers were provided hands-on training to continue these sessions at home. The study indicates a high burden of CP in the study sites and also the need of adequate rehabilitation services for betterment of the children. Similar studies should be conducted to generate evidence regarding the epidemiology of CP among children in Nepal.
650			_aNCPR. _92281
650			_aCP. _92282
650			_aChildren. _91331
650			_aGorkha. _92283
650			_aNepal. _9362
856			_uhttp://nhrc.gov.np/contact/t _yVisit NHRC Library
942			_2NLM _cRR