Sickle cell disease : Fast focus study guide
"Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Som...
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| Corporate Authors: | , |
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| Format: | Book |
| Language: | English |
| Series: | Consensus study report.
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| Subjects: | |
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| LEADER | 02942cam a2200361 i 4500 | ||
|---|---|---|---|
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| 005 | 20230327113905.0 | ||
| 008 | 200731s2020 dcuab b 000 0 eng d | ||
| 010 | |a 2020943342 | ||
| 020 | |z 9781511984850 | ||
| 035 | |a (OCoLC)on1237654933 | ||
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| 245 | 0 | 0 | |a Sickle cell disease : Fast focus study guide |
| 336 | |a text |b txt |2 rdacontent | ||
| 337 | |a unmediated |b n |2 rdamedia | ||
| 338 | |a volume |b nc |2 rdacarrier | ||
| 504 | |a Includes bibliographical references. | ||
| 520 | |a "Sickle cell disease (SCD) is a genetic condition that affects approximately 100,000 people in the United States and millions more globally. Individuals with SCD endure the psychological and physiological toll of repetitive pain as well as side effects from the pain treatments they undergo. Some adults with SCD report reluctance to use health care services, unless as a last resort, due to the racism and discrimination they face in the health care system. Additionally, many aspects of SCD are inadequately studied, understood, and addressed. Addressing Sickle Cell Disease examines the epidemiology, health outcomes, genetic implications, and societal factors associated with SCD and sickle cell trait (SCT). This report explores the current guidelines and best practices for the care of patients with SCD and recommends priorities for programs, policies, and research. It also discusses limitations and opportunities for developing national SCD patient registries and surveillance systems, barriers in the healthcare sector associated with SCD and SCT, and the role of patient advocacy and community engagement groups." -- |c Provided by publisher | ||
| 536 | |a Supported by the National Academy of Sciences and the Office of the Assistant Secretary for Health, an operating agency of the U.S. Department of Health and Human Services |b HHSP233201400020B |g HHSP23337086 | ||
| 650 | 0 | |a Sickle cell anemia. | |
| 650 | 0 | |a Fear of medical care. | |
| 650 | 0 | |a Discrimination in medical care. | |
| 650 | 7 | |a Sickle cell anemia. |2 fast |0 (OCoLC)fst01118092 | |
| 710 | 2 | |a National Academies of Sciences, Engineering, and Medicine (U.S.). |b Committee on Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action, |e issuing body. | |
| 710 | 2 | |a National Academies of Sciences, Engineering, and Medicine (U.S.). | |
| 710 | 2 | |a National Academies of Sciences, Engineering, and Medicine (U.S.). |b Health and Medicine Division. | |
| 776 | 0 | 8 | |i Online version: |t Addressing Sickle Cell Disease : A Strategic Plan and Blueprint for Action |z 9780309669603 |w (OCoLC)1236264993 |
| 830 | 0 | |a Consensus study report. | |
| 856 | |y http://www.nhrc.gov.np/ | ||
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| 999 | |c 3167 |d 3167 | ||